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2024 DESSH Clinic and Family Conference


September 12th-14th
St. Louis, MO, USA

About

/ About

The DESSH Foundation is pleased in its third year to expand the DESSH clinic in conjunction with Dr. Marwan Shinawi, Washington University School of Medicine, and St. Louis Children's Hospital. The goal of our clinic is to collect patient data over time to study the progression of DeSanto-Shinawi Syndrome. With this longitudinal patient data, we can advance research and treatments for DESSH.

2024 Schedule at-a-glance

11
th

WEDNESDAY

6:00pm Welcome Reception at Aloft Hotel Tactic One Room

12
th

THURSDAY

8am-4:30pm Clinic Appointments

 

5-7pm Private access to the Botanical Gardens with boxed dinner. 

13
th

FRIDAY

8am-4:30pm Clinic Appointments 

 

Dinner outing TBD

14
th

SATURDAY

8am-1pm DESSH Symposium at Eric P. Newman Education Center

Schedule

/ Lodging

We understand that traveling for medical reasons can be difficult, and we want to make it as easy as possible for our patients and their families. This year we have discounted room rates for our conference attendees at two nearby hotels.

LODGING

/ Contact

CONTACT PERSON

For any additional questions contact Caitlin Piccirillo at Caitlin@dessh.org or our Conference Coordinator Colleen Tosti at ctosti9@gmail.com.

COMPANY INFO

The DESSH Foundation

3 Higgins Drive

Vernon, NJ 07462

www.dessh.org

info@dessh.org

Tel: 718-406-3842

CONTACT
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