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2024 DESSH Clinic and Family Conference
October 2nd -5th, 2024
St. Louis, MO, USA
/ About
The DESSH Foundation is pleased to host its second DESSH clinic in conjunction with Dr. Marwan Shinawi, Washington University School of Medicine, and St. Louis Children's Hospital. The goal of our clinic is to collect patient data over time to study the progression of DeSanto-Shinawi Syndrome. With this longitudinal patient data, we can advance research and treatments for DESSH.
17
PATIENTS
3
COUNTRIES
4
SPECIALIST CONSULTS
7
CONFERENCE SPEAKERS
/ 2023 Schedule at-a-glance
27
th
WEDNESDAY
6:00pm Welcome Reception at Aloft Hotel Tactic One Room
28
th
THURSDAY
8am-4:30pm Clinic Appointments
6:00pm Private Group Dinner at The Shack
29
th
FRIDAY
8am-4:30pm Clinic Appointments
8am Breakfast from Whole Foods
12:00pm Lunch from Chick-Fil-A
5:00pm City Museum Outing and Pizza Dinner
30
th
SATURDAY
8am Breakfast
8:30am DESSH Syndrome Overview
9:30am Panel Discussion
10:30am Break
10:45am DESSH Research: Vogt Lab 11:30am DESSH Research: Gabel Lab
12pm Closing
12:30pm Group Photo
/ Contact
CONTACT PERSON
For any additional questions contact Caitlin Piccirillo at Caitlin@dessh.org or our Conference Coordinator Colleen Tosti at ctosti9@gmail.com.
COMPANY INFO
Tel: 718-406-3842