/ About
The DESSH Foundation is pleased in its third year to expand the DESSH clinic in conjunction with Dr. Marwan Shinawi, Washington University School of Medicine, and St. Louis Children's Hospital. The goal of our clinic is to collect patient data over time to study the progression of DeSanto-Shinawi Syndrome. With this longitudinal patient data, we can advance research and treatments for DESSH.
2024 Schedule at-a-glance
11
th
WEDNESDAY
6:00pm Welcome Reception at Aloft Hotel Tactic One Room.
12
th
THURSDAY
8am-4:30pm Clinic Appointments
5-7pm Private access to the Botanical Gardens with boxed dinner.
13
th
FRIDAY
8am-4:30pm Clinic Appointments
5:30pm Breakfast for Dinner at The Shack.
14
th
SATURDAY
8am-1pm DESSH Symposium at Eric P. Newman Education Center
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Child care provided.
/ Contact
CONTACT PERSON
For any additional questions contact Caitlin Piccirillo at Caitlin@dessh.org or our Conference Coordinator Colleen Tosti at ctosti9@gmail.com.
COMPANY INFO
Tel: 718-406-3842